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Family deals with son with Spina Bifida

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Contributed by: nikki higashi on 3/20/2007

When my husband and I found out the shocking news at our 5 month pre-natal visit at the OBGYN, I could barley stand. I could not stop crying. My son would be born with a neural tube defect, or in other words Spina Bifida.

This usually occurs because a lack of Folic Acid. This was our 2nd child and we were faced with so many obstacles. First...do we abort? No, that was not an option so we proceeded.

Nolan was born on Nov. 4, 2005, 8lbs 2 0z at 37 weeks....big boy, still a big boy:)

He had surgery the day of his birth to close his back and then we have had six shunt surgeries since. It has been a rough road, but God is good and it could be worse.

Now that he is born I would like to give every woman thinking about getting pregnant or not the importance of Folic Acid. Educate others. The Colorado Spina Bifida Association has come along side and been a huge support. I have made friends that i am so thankful for and i hope to help support others. The CSBA is a small organization with little funds. Most people have never heard of Spina Bifida and when you are affected by this there should be a place to go for support. From birth on...we need support. When our kids get older they need support too. My prayer is that we can have more of an impact on the community so that people have a place to go. Wheel chair camps/sports/education/medical needs, etc.

Nolan is doing well. A sweet soul. We just ordered a wheel chair that is so tiny. Where is Nolan and our first son going to play together? What parks are wheelchair accessible for the both of them to enjoy life together? I want to give my kids everything I can and by supporting the CSBA, I will be able to with thier support. We will have others facing life like we are. We are not alone and it is a good feeling that we are not.

Thank you for letting me share my story.
Nikki

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Submitted By: Brandi Davis

posted on 5/3/2007 @ 10:33:39 PM

Rated Story

We had the pleasure of meeting Nolan at one of my very best friends wedding reception. Nolan is a beautiful little boy who, I believe will grow as a happy and yes...healthy individual! There is more to health than the appearance and physical abilities of a child. A child is healthy when loved and supported and Nolan is so very lucky! He has a wonderful loving family! My son was also born with Spina Bifida. It's been a long road for all of us, but there isn't a day that goes by that he doesn't smile and pass it on. He plays at the park (in his own way) with his younger sister. There is no doubt in my mind that Nolan won't do the same with his big brother! With love and blessings - Brandi & Shea

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CONTRIBUTOR INFORMATION

nikki higashi

Henderson , CO

nikki higashi has posted 1 story and 0 comments since joining on 3/20/2007. nikki higashi 's average story rating is 5.

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